I'm a supporter of Rare Voices Australia! How about you?

Rare Voices Australia (RVA) is Australia's non-profit, national peak organisation advocating for all who live with rare disease. RVA provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases. Patient-centred, RVA works with all stakeholders including patients, key peak bodies, governments, researchers, clinicians and industry to promote rare disease research, diagnosis, treatment and services.

Check out their webpage and latest newsletter
http://www.rarevoices.org.au/