Patient Advocacy & Education.

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Our big vision is for others to share in our big vision:

'To empower families on their journey with a loved one who is affected by a genetic condition. To create a community of health care workers who are not afraid to face these rare conditions head on with the family, and facilitate access to the best life achievable.'

We will achieve this through education of both families and healthcare teams. We provide written information to clinicians, though we can also provide information sessions to your treating teams, summarise the most up to date articles about the genetic condition you or your loved one knows so intimately and areavailable to meet, advise and guide families & professionals though this often isolating journey.

The staff at Private Genetic Health have presented and hosted information sessions to community support groups, specialist medical practitioners, nurses, and doctors in training.

Contact us to find out how we can help you help others understand your genetic disorder.